rare diseases

Shire Issues 2016 Annual Responsibility Review

Press Release

LEXINGTON, Mass., USA , March 23, 2017 /3BL Media/ – Shire plc (LSE: SHP, NASDAQ: SHPG) today announced the launch of the Company’s 2016 Annual Responsibility Review. The Review, available at shire.com, highlights how Shire’s growth has strengthened its approach to Responsibility and allows the Company to better meet the needs of people around the world with rare diseases and their families. 

Shire and SeriousFun: Our First Year Together

Multimedia with summary

 In 2016, Shire announced its partnership with SeriousFun Children’s Network, a global community of 30 camps and programs around the world that provide transformative camp experiences to children living with serious illnesses and their families – totally free of charge.

The Worst Disease You’ve Never Heard of is Just as Common as Cystic Fibrosis and ALS


Have you heard of Epidermolysis Bullosa? Not many people have. Yet, it’s as common as ALS and Cystic Fibrosis. It’s kind of a tongue twister - we call it “EB” for short.

Rare Diseases Are Not That Rare


People affected by rare diseases often face extraordinary barriers. They can find it difficult to get the right diagnosis, expert advice or treatment and support. It’s challenging – especially when they are trying to cope with the uncertainty of an often progressive, devastating and debilitating disease. But the complexity of these conditions, and the small number of patients affected, means this area of research doesn’t always attract the greatest interest.


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